Chronic Illness, Count Your Blessings, Fibro, Fibro Life, Fibromyalgia

Life-Belts And Lead Weights.


There are things that help in the battle with fibro, and there are things that hinder. 

Some days I’m drowning, and some days I’m a veritable olympian swimmer.

This is my list of some of my own Life-belts and Lead Weights. What are yours?

(I keep trying to space the next line lower down, but for some unfathomable reason, despite reporting that it has successfully updated this post, it sodding well hasn’t. Please pretend there is a suitable gap before both the Lead Weights and Life-Boats headings!)

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Lead Weights.

Stress. Not just the usual mental and emotional stressors, I react badly to physical stressors, like pushing myself when my body is screaming in protest at the activity. Or being too cold, or too hot, or too tired. Or getting a bug (not the multi-legged/winged kind, the viral or bacterial kind).

Various Medications. Binders, fillers, additives, who knows? It could be something as minor as one manufacturer using a different product to another manufacturer for cleaning their machinery. I react badly – sometimes REALLY badly – to generic versions of branded products. Or to different formats of the same product from the same company. I react horribly to a huge number of medications that are ALWAYS considered “well-tolerated”. (Apologies for resorting to caps for emphasis, I seem incapable of managing to use the bold, underline and italic buttons without my cursor shifting position. The examples above were clearly a fluke. And then there’s the bar with My Site, Reader, Write, etc, that keeps moving down to obscure what I’ve just written. Ditto the Preview, Publish, Save Draft bar. Advice, anyone?)  The list of “Do Not Prescribe, Intolerant” meds in my GP and hospital notes is never-ending and continually growing. Sigh.

Processed Foods. Chemicals, additives, hormones, anti-biotics, E numbers…….read The Great Food Gamble, by John Humphrys, for a clear insight into what modern farming practices do to our food.

Tap Water. I kid you not. I have to drink bottled water. There was a time when I also had to wash and cook food in bottled water, too. These days, since my hypothyroid issue was addressed with T3 (I don’t convert the standard T4 (thyroxine) into the active form (T3, tertroxin, liothyronine) that is used by the body), I can just about tolerate drinks made with Maxtra filtered water, and food cooked and prepped in same. If I’m being really sensitive, like during a flare, tap water even irritates my skin if I wash or bath in it.

Judgement, Intolerance, Arrogance. Not just doctors and consultants, non-medical people, too.

Some OTC / Natural Medicine Products. Binders, fillers, additives, sometimes just the active ingredient. Weird. I can almost never take powdered tryptophan, which purports to be pure, yet can tolerate it in cottage cheese. I can’t take GABA (Gamma Amino Butyric Acid, a neuro-calmer) or the calming amino acid theanine without experiencing agitation and palpitations instead of serenity and calm. Theanine is high in ordinary tea, and is very likely part of the reason we turn to “Tea!” in any crisis. Again, I seem to tolerate drinking tea.

Bad Weather. Gloomy, grimy, grim grey days drag my mood to the same description. Cold weather makes me want to hibernate. I’m a sunshine girl.

Bad Relationships. No explanation required. Self-removal from situation definitely required in name of sanity, but impossible in cases of family. Bummer.

Flares (please see “Flare You Go Again…” post.

The General Election Results. Another 5 years of Conservative cruelty headed our way.

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Life-Belts.

Ben. Love, support, faith in me, understanding, communication, practical help, cuddly bits, sexy bits (blush)

My New Friends Here.

Music.

Writing.

Reading.

My iPad, my iPod.

Movies, TV Dramas, Comedies, Stand Up Comedy, Informative Documentaries, Talent Shows (esp singing, dancing).

Helping Other People.

My Cats.

Sunshine.

Beaches.

Mountains.

Lakes.

Travel, Holidays. Except that the logistics of lugging med supplies and walking aids has now made this impossible. I haven’t been away anywhere for 6 years, and that was the first time for the preceeding 5 years, too. Ha! So that’s once in 11 years. I have Location Envy for all of you who are lucky enough to live near a beach, mountain, lake or other area of natural wonderfulness.

Fluffy, Fleecy Throws.

My Sheepskin Slippers.

My V Pillow.

My Heated (or cooled) Water-bed.

My Lightbox. Stimulates all kinds of hormone production and release, and an essential when I can’t face opening the curtains.

My Natural Medicines. Aminos, vitamins, minerals, hormones, essential oils, and others. I’m definitely worse without them, and it shows in my monthly blood tests, proving the effect is not placebo. I even reversed my raging osteoporosis using two vitamins that every Dr I know told me did “nothing”. I have the bone density scans to prove it. Some of my docs suffer so badly from cognitive dissonance that even with the scans they can’t accept it.  Others are just happily amazed.

My GP. Total saint. Falls into latter category above.

Mineral Water. Every process in the body works best with optimal hydration. I drink around 2 litres of plain bottled mineral water a day. I never drink the fizzy water, or the flavoured stuff. I actually like plain old, flat old water! It’s not difficult to do when I’m having to swallow so many meds and supplements several times a day.

My heatpads.

My ice-packs (migraines).

Some Of My Meds. I wouldn’t want to be without my migraine meds, or my anti-emetics, or my steroid hormones, or my painkillers, or……ok, I guess I mean ALL my meds.

Counting My Blessings.

There are probably more, but the fog is swirling in today. B had huge trouble waking me up this morning. Not sure why. Feel really quite unwell.

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